winter’s end: dementia and dying well

Arguably among the worst of all medical afflictions, the dementias slowly destroy one’s personality, take a tremendous emotional, physical, and financial toll on patients and families, and are irreversible and inexorably fatal. Winter’s End: Dementia and Its Life-Shortening Options is constructed around a lengthy and detailed nonfiction account that is layered with the voices of approximately 100 palliative medicine practitioners, legal scholars, bioethicists, social workers, nurses, neurologists, psychiatrists, and other authorities from North America and Europe.

This book explores how and when one might prepare to foreshorten life after being diagnosed with a dementing illness, while not ignoring the reality that for most people such actions are unthinkable and unacceptable. Dan Winter was one of the exceptions, and after being diagnosed with early-onset Alzheimer’s disease, he resolved to hasten his death. He struggled over what method to employ and the timing of when to act.

Winter’s End is intended to catalyze conversations between clinicians, people affected by dementias, and the general public. It is a spellbinding and provocative book about a taboo subject that is increasingly germane to all aging societies that value patient autonomy.

Lewis Cohen, MD is a professor emeritus of Psychiatry and a Palliative Medicine researcher, who has received numerous literary and academic honours. He is a Guggenheim fellow and was a Rockefeller Bellagio scholar and a Bogliasco Foundation resident. He is a recipient of the Thomas and Eleanor Hackett Memorial Lifetime Achievement Award from the Academy of Consultation-Liaison Psychiatry and his research has been funded by NIH and the Robert Wood Johnson Foundation.

As a medical student, Dr. Cohen studied under Anna Freud, who interested him in end-of-life issues. He has been published in the Huffington Post, Slate Magazine, and the Atlantic.